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Oct 06 2021

Social media, activism, trucker caps: the fascinating story behind long COVID

Today, we use the term “long COVID” to describe the lingering symptoms some people have many weeks or months after infection.

But how long COVID came to be recognised by doctors and the wider community shows us the power of patient activism, networking, research skills and persistence.

Using social media, patients collected evidence of their symptoms, and advocated for themselves and for further research. Even the term long COVID stems from this activism.

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